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Authors
Lawrence, Kendra A. K.
Belter, Lisa https://orcid.org/0000-0002-8348-1916
Curry, Mary
Tak, Casey
Schroth, Mary
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Article History
Received: 19 February 2026
Accepted: 15 April 2026
First Online: 27 April 2026
Declarations
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: Lisa Belter and Mary Curry are employees of Cure SMA, which has received funding from the SMA industry collaboration (SMA-IC) for other distinct projects. These authors have no competing personal interests. Mary Schroth was an employee of Cure SMA at the time of writing. Kendra Lawrence has received financial compensation from Cure SMA for research activities, including work related to this study. Casey Tak has no conflicts of interests to declare.
: Institutional review board (IRB) approval was obtained by the Western Copernicus Group (WCG) IRB (IRB ID: 20173058). This study was performed in accordance with the Helsinki Declaration of 1964, and its later amendments. Consent was assumed through survey participation. The STROBE reporting guideline for observational studies was followed.
