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Article History

Received: 23 March 2026

Accepted: 23 April 2026

First Online: 6 May 2026

Declarations

:

: Maria Chovi-Trull has nothing to disclose. Nancy C. Ñungo-Garzón receives funding from the CUIDAME project (2019-027-1). Karolina A. Aragon-Gawinska is funded by the CIAPOT/2023/25. The Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER) is an initiative of Instituto de Salud Carlos III. Inmaculada Pitarch-Castellano is a member of the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and has received personal fees for consulting and training activities from Biogen, Roche, and Novartis outside the submitted work. Asunción Albert-Marí has nothing to disclose. Javier García-Pellicer has nothing to disclose. José L. Poveda-Andrés has nothing to disclose. María D. Edo-Solsona has nothing to disclose. Juan F. Vázquez-Costa is a member of the advisory board of CUIDAME. He is funded by grants from the Instituto de Salud Carlos III (PI24/01512, DTS23/00112) and has received personal fees from Biogen, Roche, and Novartis outside the submitted work.

: The study was approved by the Clinical Research Ethics Committee of Hospital Universitari i Politècnic La Fe and conducted in accordance with the Declaration of Helsinki. Due to its non-interventional observational design based on routinely collected data, informed consent was not required, as determined by the Ethics Committee.