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Authors
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Funding
Funding for this research was provided by:
Biogen
Genentech
Novartis Gene Therapies
Scholar Rock
Biohaven Pharmaceuticals
Epirium Bio
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Article History
Received: 23 June 2026
Accepted: 3 August 2026
First Online: 18 August 2026
Declarations
Conflict of Interest: Lauren Eisenman, Angie Wise, and Mary Curry declare that they have no competing interests.
Ethical Approval: Recruitment materials, consent language, and survey content were reviewed and approved by the WCG Clinical Solutions Institutional Review Board on July 11, 2021 (IRB tracking number: 20213257). The IRB determined that the study met the criteria for a waiver of documentation of consent under 21 CFR 56.109(c). By proceeding with the survey, participants provided implied consent to participate.
