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Authors
Matthys, Emiel https://orcid.org/0000-0003-3389-8999
Delbeke, Heleen https://orcid.org/0000-0001-7972-0139
Van Keer, Karel https://orcid.org/0000-0003-0826-3879
Casteels, Ingele https://orcid.org/0000-0002-2335-1845
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Article History
Received: 12 March 2025
Accepted: 9 May 2025
First Online: 8 June 2025
Declarations
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: Emiel Matthys, Karel Van Keer, and Ingele Casteels have received speaker honorarium from Recordati Rare Diseases. Heleen Delbeke has nothing to disclose.
: Ethical approval was acquired from the Ethics Committee of the University Hospital Leuven (study number S69355). Patients were informed about the study, and the study was performed in accordance with the Declaration of Helsinki of 1964 and its later amendments.
