McCaffrey, Stacey A. http://orcid.org/0000-0003-0130-7218
Chiauzzi, Emil http://orcid.org/0000-0003-4995-7308
Chan, Caroline
Hoole, Michael
Funding for this research was provided by:
Robert Wood Johnson Foundation (grant 73040)
Article History
First Online: 2 July 2018
Compliance with Ethical Standards
:
: This research was funded through a Robert Wood Johnson Foundation grant 73040, awarded to PatientsLikeMe, Inc. on November 2, 2015.
: Stacey McCaffrey, Ph.D. is a consultant for PatientsLikeMe, Inc. Emil Chiauzzi, Ph.D., Michael Hoole, B.S. and Caroline Chan, B.A. are employees of and own stock options in PatientsLikeMe, Inc.
: This study was approved by New England IRB (NEIRB), A WIRB-Copernicus Group Company on July 14, 2016, and was performed in accordance with the ethical standards as laid down in the 1964 Declaration of Helsinki and its later amendments or comparable ethical standards.
: Informed consent was obtained from all individual participants included in the study during group concept mapping. The NEIRB determined that consent was not necessary for the statement generation phase of this study as it was voluntary, anonymous, and no personally identifying information was being collected.
: The datasets generated during and/or analyzed during the current study are available from the corresponding author on reasonable request.