van Balen, Erna C. http://orcid.org/0000-0002-3678-6581
Wesselo, Marjolein L.
Baker, Bridget L.
Westerman, Marjan J. http://orcid.org/0000-0002-9827-6958
Coppens, Michiel
Smit, Cees
Driessens, Mariƫtte H. E.
Leebeek, Frank W. G.
van der Bom, Johanna G. http://orcid.org/0000-0001-9095-2475
Gouw, Samantha C. http://orcid.org/0000-0002-1957-4122
Article History
First Online: 6 November 2019
Compliance with Ethical Standards
:
: This study was funded by the Dutch Ministry of Health, Welfare and Sports as part of the Haemophilia in the Netherlands study.
: MC has received financial support for research, as well as lecturing and consultancy fees from Bayer, CSL Behring, Sanquin Blood Supply and UniQure. FL received an unrestricted research grant from CSL Behring and Shire (Takeda) and is a consultant for UniQure, CSL Behring and NovoNordisk of which fees go to the university. He is also a Data and Safety Monitoring Board member for a study conducted by Roche. JvdB has been a teacher on the educational activities of Bayer. EvB, MLW, BB, MJW, CS, MD and Samantha C. Gouw have no conflicts of interest that are directly relevant to the content of this article.
: The datasets generated during and/or analysed in the current study are not publicly available because of privacy-sensitive information included in the interview transcripts but are available from the corresponding author on reasonable request. Interview transcripts are in Dutch.
: Exemption from full dossier ethical approval was obtained from the Research Ethics Board of the Amsterdam University Medical Centers.
: All participants provided written informed consent.