Crossnohere, Norah L. http://orcid.org/0000-0002-2811-1330
Fischer, Ryan
Vroom, Elizabeth
Furlong, Patricia
Bridges, John F. P.
Funding for this research was provided by:
Parent Project Muscular Dystrophy
Article History
Accepted: 23 January 2022
First Online: 4 March 2022
Declarations
:
: Financial support for this study was provided entirely by a contract with Parent Project Muscular Dystrophy. Parent Project Muscular Dystrophy receives financial support from Pfizer to conduct benefit-risk research. The funding agreement ensured the authors’ independence in designing the study, interpreting the data, writing, and publishing the report. The authors and Parent Project Muscular Dystrophy are open to collaborations involving additional analysis and extensions of this survey.
: Ryan Fischer and Pat Furlong are employees of Parent Project Muscular Dystrophy. Norah Crossnohere, Elizabeth Vroom, and John Bridges have no conflicts to declare.
: Protocols for data collection and analysis were approved as research exempt from further human subject review (Johns Hopkins Bloomberg School of Public Health IRB No. 8175, The Ohio State University College of Medicine IRB No. 2019E0113). Protocols for engagement were deemed non-human subject research (Johns Hopkins Bloomberg School of Public Health IRB No. 7984).
: Participants provided informed consent.
: Not applicable.
: The authors and PPMD are open to collaborations involving additional analysis and extensions of this survey.
: The authors and PPMD are open to sharing code for collaborations involving additional analysis and extensions of this survey.
: NC, JB, RF contributed to study design. NC, JB participated in data analysis. NC drafted the manuscript. NC, RF, PF, EV, JB provided critical revisions.
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