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Article History

Accepted: 28 August 2022

First Online: 19 September 2022

Declarations

:

: This work was funded by a grant from the Innovation and Value Initiative, a 501(c)3 nonprofit research organization (IVI).

: Drs. Xie and Chapman, Ms. Bright, and Ms. Malik are employees of IVI. The authors do not have any other financial or non-financial interests that are directly or indirectly related to the work submitted for publication.

: All data are provided in the supplemental material or in the tables; we have made all data available.

: SDR conceptualized the study design and implementation, conducted interviews, supervised the data analysis, and drafted and edited the manuscript. LB assisted with the data collection, data analysis, and study management. She also reviewed and edited the manuscript and prepared the results tables. BB contributed to the instrument development, reviewed the data collected, and reviewed and edited the manuscript. RX assisted with participant recruitment, review of the data, and reviewing and editing the manuscript. RC assisted with the review of the data and reviewing and editing the manuscript. JB conceptualized the study idea, assisted with participant recruitment, led the advisory group meetings, and reviewed and edited the manuscript. EM assisted with participant recruitment, organized meetings with patient advocates, reviewed the data, and reviewed and edited the manuscript. JS assisted with data collection, review of the data, and reviewing and editing of the manuscript.