Smith, Ian P. http://orcid.org/0000-0002-1236-2872
Whichello, Chiara L. http://orcid.org/0000-0003-1905-8985
de Bekker-Grob, Esther W. http://orcid.org/0000-0001-7645-6168
Mölken, Maureen P. M. H. Rutten-van http://orcid.org/0000-0001-8706-3159
Veldwijk, Jorien http://orcid.org/0000-0003-4822-5068
de Wit, G. Ardine http://orcid.org/0000-0002-1375-7657
Funding for this research was provided by:
Innovative Medicines Initiative (115966)
Article History
Accepted: 15 November 2022
First Online: 20 January 2023
Declarations
:
: This study formed part of the PREFER project. The Patient Preferences in Benefit-Risk Assessments during the Drug Life Cycle (PREFER) project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 115966. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA. The PREFER project aims to strengthen patient-centric decision-making through evidence-based recommendations guiding stakeholders on how and when patient preference studies should inform medical product development and evaluation.
: The authors have no conflicts of interest or competing interests to declare with regard to the content of this article in either a financial sense or in a way that could impart bias on the work submitted for publication such as professional interests, personal relationships or personal beliefs (amongst others).
: The data collected and used for this study are available for non-commercial purposes, without breaching participant confidentiality, upon reasonable request to the first authors.
: Not applicable
: The design of the survey and data collection were primarily conducted by IS and CW under the guidance of EWdBG, MvRM, JV, and GAdW. Data analysis was done by IPS with assistance and guidance from JV. The manuscript was written by IPS with assistance from CW, EWdBG, MvRM, JV, and GAdW.
: This study was approved by the Medical Research Ethics Committee of the UMC Utrecht (WAG/mb/19/045208) and was conducted according to the principles of the Declaration of Helsinki. All respondents provided written informed consent prior to participating in the study.
: Informed consent for participation in the study was obtained from all participants prior to completing the survey.
: Informed consent to use the data collected for academic publications was obtained from all participants prior to completing the survey.