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Authors
Braybrook, Debbie
Coombes, Lucy
Scott, Hannah M.
Harðardóttir, Daney
Roach, Anna
Bariuan, Jemimah
Ellis-Smith, Clare
Downing, Julia
Murtagh, Fliss E. M.
Bluebond-Langner, Myra
Fraser, Lorna K.
Harding, Richard
Bristowe, Katherine https://orcid.org/0000-0003-1809-217X
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Funding
Funding for this research was provided by:
H2020 European Research Council (772635)
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Article History
Accepted: 11 May 2025
First Online: 25 May 2025
Declarations
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: The authors disclosed receipt of the following financial support for the research, authorship and/or publication of this article: the Children’s Palliative care Outcome Scale was funded by a European Research Council’s Consolidator Award (Grant ID: 772635) with the overall aim to develop and validate a person-centred outcome measure for children, young people, and their families affected by life-limiting and life-threatening conditions. Principal Investigator: Richard Harding. This article reflects only the authors’ views and the European Research Council is not liable for any use that may be made of the information contained therein. Fliss E.M. Murtagh is a National Institute for Health and Care Research (NIHR) Senior Investigator. The views expressed in this article are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care. Hannah M. Scott, King’s College London, is supported by the NIHR Applied Research Collaboration South London (NIHR ARC South London) at King’s College Hospital NHS Foundation Trust. The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.
: Debbie Braybrook, Lucy Coombes, Hannah M. Scott, Daney Harðardóttir, Anna Roach, Jemimah Bariuan, Clare Ellis-Smith, Julia Downing, Fliss E.M. Murtagh, Myra Bluebond-Langner, Lorna K. Fraser, Richard Harding and Katherine Bristowe have no conflicts of interest that are directly relevant to the content of this article.
: Ethics approval was granted by the Bloomsbury Research Ethics Committee (HRA:19/LO/0033).
: Not applicable.
: Not applicable.
: It is not possible for the data from this study to be made available.
: Not applicable.
: All authors: conception and design of the work. LC, DB and AR: data collection. KB and DB: data analysis. All authors: interpretation of data. KB and DB: draft manuscript preparation. All authors: critical review and revision of the manuscript.
