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Authors
Munung, Nchangwi Syntia https://orcid.org/0000-0003-1498-3602
Osei-Tutu, Lawrence
Said, Arafa Salim
Tutuba, Hilda
Changafu, Cynthia
Mela, Solange
Sambou, Alieu Badara W.
Nembaware, Victoria
Okocha, Emmanuel Chide
Kuona, Patience
Tshilolo, Leon
,
Agbor-Ndakaw, Arrey Echi
Chantal, Ayuk Anne
Inegbedion, Blessing
Mwita, Emmy
Kironde-Hall, Eseza
Owino, Eunice
Togola, Fatoumata
Bakatukanda, Grajevis
Ohemeng-Tinyase, Naana Abena
Twum, Ivy
Bwalya, Jean Pierre
Besa, Ketty Chunga
Chima, Molyn
Peerbhai, Nabeelah
Mukuubi, Nakunja Ruth
Mohamed, Neema
Mdliva, Paul
Wesonga, Rissy
Masamba, Sarah Matondo
Nassanga, Shadiah
Anderson, Stephanie
Kayange, Twelusiwe
Sabatello, Maya
Treadwell, Marsha
Makani, Julie
Wonkam, Ambroise
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Funding
Funding for this research was provided by:
National Human Genome Research Institute (U24 HG010733-01)
National Heart, Lung, and Blood Institute (U24HL135600)
National Institute of Mental Health (U01MH127692)
University of Cape Town
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Article History
Received: 30 May 2025
Accepted: 25 August 2025
First Online: 28 September 2025
Declarations
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: Conceptualisation: NSM. Funding acquisition: NSM and AW; methodology: NSM; framework development: all authors; project administration: NSM VN, MS; supervision: NSM, MS AW; validation; all authors; writing—original draft: NSM; writing—review and editing: all authors.
: The data that support the development of the framework are available from the Sickle Africa Data Coordinating Center, but restrictions that were applied in relation to the ethics of the current study apply to the availability of these data, so some of it is not publicly available. However, the data are available from the authors upon reasonable request and with the required ethics approval and consent from the members of the PAPIR WG.
: The authors have no competing interests to declare that are relevant to the content of this article.
