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Article History

Accepted: 25 November 2024

First Online: 20 December 2024

Declarations

:

: No funding was received for the writing of this article.

: DJB reports a financial interest in granted (US patents 8,651,107; 8,844,530; 9,795,752; and 10,814,082, and related international patents) and pending patents for respiratory devices, licensed to Advanced Bio Machines PTE (ABM Respiratory Care). DWS reports reimbursement for travel expenses to a conference convened by the patient advocacy group Parent Project MD. JBB, HMB, MLD, and SLK declare no competing interests.

: The data analyzed during this study are included in this published article (see Fig. ).

: In Sect. of this article, previously published data from the CNDR were re-analyzed. Patients are recruited to the CNDR in accordance with local ethics approval processes (see: ). Requests for research projects are approved by the CNDR advisory committee. For this analysis, de-identified registry data were shared with permission.

: Not applicable.

: Not applicable.

: Not applicable.

: DJB was responsible for the conceptualization and initial drafts of this article. All authors contributed to the literature search, data analysis, methodology, and review and revision of the manuscript. All authors reviewed and approved the final manuscript before submission.