Keeney, Edna http://orcid.org/0000-0002-4763-8891
Thom, Howard
Turner, Emma
Martin, Richard M.
Sanghera, Sabina
Funding for this research was provided by:
Cancer Research UK (C11043/A4286, C18281/A8145, C18281/A11326, C18281/A15064, C18281/A24432)
Article History
Accepted: 15 February 2021
First Online: 2 April 2021
Declarations
:
: This work was funded by Cancer Research UK and the UK Department of Health (C11043/A4286, C18281/A8145, C18281/A11326, and C18281/A15064, C18281/A24432). SS is funded by an NIHR fellowship (PDF-2017-10-008). HT and RMM were supported by the National Institute for Health Research (NIHR) Biomedical Research Centre at University Hospitals Bristol NHS Foundation Trust and the University of Bristol. The views expressed in this publication are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. The funding source was not involved in the design of the study, the collection, analysis and interpretation of data or the writing of the manuscript.
: RMM and ET report grants from Cancer Research UK during the conduct of the study. HT has received personal consulting fees from Novartis Pharma AG, Pfizer Inc, Roche Holding AG, and Janssen Pharmaceutica. The funding received by HT was not related to the present publication or in a similar clinical area. EK has received personal consulting fees from Novartis Pharma AG, Pfizer Inc, and Roche Holding AG. The funding received by EK was not related to the present publication or in a similar clinical area.
: All authors were involved in the conception of the study. EK designed and administered the questionnaire and analysed the results with guidance from RM, ET, HT and SS. SS, HT, ET and RM contributed to the interpretation of the data and writing of the manuscript. EK wrote the first draft of the manuscript with SS, HT, ET and RM critically revising for important intellectual content. All authors read and approved the final manuscript.
: We acknowledge Peter Albertsen, Malcolm Mason, Sam Merriel, Anthony Zietman, David Neal, Nora Pashayan and Tyler Seibert for their advice and guidance during the initial development and piloting of the questionnaire. We also acknowledge Nora Pashayan, Henrik Gronberg, Anne Mackie, Peter Albertson, Divya Mallam, Sam Merriel, Hashim Ahmed, Fiona Walter, Michael Barry, Silvia Lombardo, Janet Rimmer, Allan Hackshaw, Tyler Seibert , Anthony Zietman, Martin Eklund, Eveline A.M. Heijnsdijk, Anssi Auvinen, Caroline Moore, David Neal and Rosalind Eeles for participating in the consensus process.
: Redacted datasets generated during and/or analysed during the current study are available from the corresponding author on reasonable request.