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Authors
Flatau, Tina
Greenfield, Julie
Dickie, Brian
Rayner, Oli
Matthews, Helen
Wise, John https://orcid.org/0000-0002-5311-6555
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Article History
Accepted: 7 July 2022
First Online: 12 August 2022
Declarations
:
: Action Duchenne, Ataxia UK, the Motor Neurone Disease Association and Cure Parkinson’s are all members of the Pistoia Alliance. The Pistoia Alliance provided funding for a consultant, John Wise, as a coordination resource for the questionnaire and joint authorship of this paper.
: The authors listed below are volunteers or employees of charities consulted in this manuscript, they declare no affiliations with, or direct or indirect financial interest in the subject matter of this manuscript: Tina Flatau, Julie Greenfield, Brian Dickie, Oli Rayner, Helen Matthews.
: Not applicable.
: Not applicable.
: Not applicable.
: Not applicable.
: Not applicable.
: All authors contributed to the questionnaire conception and design. Material preparation, collection of inputs and analysis were performed by John Wise and Tina Flatau. The first draft of the manuscript was written by Tina Flatau and all authors commented on previous versions of the manuscript. All authors read and approved the final manuscript. The authors confirm that they have all agreed with the content and gave explicit consent to submit.
