Frank, Pauline http://orcid.org/0009-0003-5023-9087
Olshan, Anne http://orcid.org/0009-0001-5472-9281
Iraca, Tracey
Anthony, Cindy
Wintrich, Sophie
Sasse, Emma http://orcid.org/0009-0006-8873-574X
Funding for this research was provided by:
Novartis
Article History
Received: 19 September 2023
Accepted: 8 November 2023
First Online: 7 December 2023
Declarations
:
: Pauline Frank and Emma Sasse are employees and own shares of Novartis Pharma AG. Anne Olshan has received consulting fees from Novartis Pharmaceuticals. Cindy Anthony is the Executive Director of AAMAC, Tracey Iraca is the Executive Director of MDS Foundation, Inc, and Sophie Wintrich is the Chief Executive of MDS UK Patient Support Group; all have received funding/honoraria from Novartis for patient engagement programs.
: Institutional review board exemption was obtained prior to caregiver recruitment. This study was performed in accordance with the principles of the Declaration of Helsinki of 1964 and its later amendments. All caregivers signed their consent prior to participating in the OBB. Participants’ rights and privacy were protected throughout the research. Participants were granted the right to withdraw from the study at any time during the research period and to withhold information as they wished. All participants remained anonymous by using an assigned alias during the OBB. All participants provided written consent for publication.