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Authors
Aguiar-Ibáñez, Raquel https://orcid.org/0000-0002-3839-6966
McQuarrie, Kelly
Martinez, Ana https://orcid.org/0009-0003-1233-9095
Penton, Hannah https://orcid.org/0000-0001-9492-7875
DiGiovanni, Laura https://orcid.org/0000-0002-8654-0117
Raina, Rutika https://orcid.org/0000-0002-1585-4514
Heisen, Marieke https://orcid.org/0000-0002-5339-6606
Jayade, Sayeli https://orcid.org/0000-0002-3058-9624
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Funding
Funding for this research was provided by:
Merck
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Article History
Received: 10 December 2024
Accepted: 14 February 2025
First Online: 25 March 2025
Declarations
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: As the study design carried minimal risks and required minimal contact with study participants, exempt status was sought from the Pearl IRB, a centralized institutional review board. In December 2022, following review of the study protocol, surveys, information sheet, and informed consent, Pearl IRB granted exempt status prior to survey launch. Survey data were collected anonymously; patient and caregiver participants could not be directly identified, with data combined for presentation in this publication.
: Raquel Aguiar-Ibáñez: Employee of Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA, and a shareholder of Merck & Co., Inc., Rahway, NJ, USA. Kelly McQuarrie: Employee of Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA, and a shareholder of Merck & Co., Inc., Rahway, NJ, USA. Ana Martinez: Employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA. Hannah Penton: Employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA. Laura DiGiovanni: Employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA. Rutika Raina: Employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA. Marieke Heisen: Former employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA. Sayeli Jayade: Employee of OPEN Health, which received funding for the study from Merck Sharp & Dohme LLC, a subsidiary of Merck & Co., Inc., Rahway, NJ, USA.
: Marieke Heisen is Director of Research and Patient Evidence at Patvocates, Utrecht, The Netherlands.
