Rosa-Lebron, Rocio
Limburg, Aubrey
Carey, Timothy S.
Udalova, Victoria M.
Entwisle, Barbara https://orcid.org/0000-0003-0131-1022
Funding for this research was provided by:
National Institute of Child Health and Human Development (P2C HD050924)
North Carolina Translational and Clinical Sciences Institute, University of North Carolina at Chapel Hill (UL1TR002489)
Article History
Received: 19 November 2024
Revised: 4 April 2025
Accepted: 7 April 2025
First Online: 22 April 2025
Declarations
:
: This study is a partnership between the University of North Carolina at Chapel Hill and the US Census Bureau. The goal of the partnership is to perform innovative data linkages between electronic health records (EHRs) and restricted Census Bureau microdata in order to produce high-quality statistics and advance health research. Both parties provided oversight. The study was reviewed and approved by the UNC Institutional Review Board (#19–0549). Safeguarding the disclosure of data derived from EHRs to the Census Bureau fulfills the responsibility of the EHR owner to protect this information under the Health Insurance Portability and Accountability Act (HIPAA). Under Title 13 of the US Code, the Census Bureau is authorized to collect information from various entities and is required to maintain its confidentiality, using it solely for statistical purposes. Aggregate statistics derived from EHRs and Census Bureau microdata are generated using rigorous disclosure avoidance techniques, ensuring full compliance with the confidentiality requirements outlined in Title 13 U.S.C., Sect. 9. Furthermore, all data products undergo review and approval by the Census Bureau’s Disclosure Review Board before they are publicly released (Data Management System (DMS) number: 7519212: Disclosure Review Board (DRB) approval number: CBDRB-FY23-POP001 - 0160). All numeric values were rounded according to US Census Bureau disclosure protocols to preserve data privacy.
: The authors declare no competing interests.