Baraliakos, Xenofon
Saffore, Christopher D.
Ye, Xiaolan
Urbanik, Jamie
Stigler, Jayne
Edwards, Molly
Truman, Isabel
Barlow, Sophie
Deodhar, Atul
Funding for this research was provided by:
AbbVie
Article History
Received: 28 May 2025
Accepted: 8 July 2025
First Online: 19 July 2025
Declaration
:
: Molly Edwards, Isabel Truman, and Sophie Barlow are employees of Adelphi Real World. Christopher D. Saffore, Xiaolan Ye, Jamie Urbanik, and Jayne Stigler are employees of AbbVie Inc. and may hold stock or stock options. Xenofon Baraliakos has received grant/research support from AbbVie and Novartis; consulting fees from AbbVie, BMS, Chugai, MSD, Novartis, Pfizer, and UCB Pharma; speakers’ bureau fees from AbbVie, BMS, Celgene, Chugai, Merck, Novartis, Pfizer, and UCB Pharma; is an editorial board member of the Annals of Rheumatic Diseases; is the ASAS President; and is the EULAR President-elect. Atul Deodhar has received grant/research support from AbbVie, BMS, Celgene, Lilly, MoonLake, Novartis, Pfizer, and UCB Pharma; and honoraria or consultation fees from AbbVie, BMS, Janssen, Lilly, Novartis, Pfizer, and UCB Pharma.
: Using a checkbox, patients provided informed consent to take part in the survey. No identifiable protected health information was extracted during the survey. Data were collected in such a way that patients and physicians could not be identified directly, with data aggregated before being shared with the subscriber and/or for publication. Data collection was undertaken in line with European Pharmaceutical Marketing Research Association guidelines and as such did not require ethics committee approval []. This research was submitted to the Pearl Institutional Review Board (study protocol nos. AG8929 for data from March–November 2021 and AG9361 for data from June 2023–June 2024) and deemed to be exempt from ethical approval. This research followed the principles of the Helsinki Declaration of 1964 and subsequent amendments. In addition, each survey was performed in full accordance with relevant legislation at the time of data collection, including the US Health Insurance Portability and Accountability Act 1996 and Health Information Technology for Economic and Clinical Health Act legislation.