Bedard, Kasey E. https://orcid.org/0000-0002-1323-2009
Griffith, Annette K. https://orcid.org/0000-0002-1885-558X
Krukowski, Kelly https://orcid.org/0000-0003-2026-1083
Funding for this research was provided by:
Prader-Willi Syndrome Association - USA
Article History
Accepted: 18 January 2024
First Online: 13 February 2024
Declarations
:
: This study received ethical approval from the Institutional Review Board at The Chicago School.
: Consent was obtained from all participants involved in the study. Caregivers were briefed on the objectives and procedures of the research and provided voluntary informed consent for themselves and their children. Children who were at an age and developmental level to provide assent were provided with an appropriate description of the study, given the opportunity to ask questions, and asked if they would like to participate. Children who were determined too young or unable to provide assent based on developmental level were still offered the opportunity to hear about the study ask questions, but their assent was determined by any form of protest during the assent meeting and during the implementation of the study. All children who were able provided assent during the assent appointment, and no dissenting behavior was reported during the study implementation.
: The authors declare no competing interests.