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Authors
Rho, Hayeong https://orcid.org/0000-0002-8102-2636
Yang, Kelsey
Chow, Signy https://orcid.org/0000-0002-6303-1774
Patriquin, Christopher J. https://orcid.org/0000-0002-2089-8650
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Article History
Received: 27 January 2025
Accepted: 15 April 2025
First Online: 8 July 2025
Declarations
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: The interview study was approved by two institutions in Toronto, Ontario (Review Ethics Boards: University Health Network: 17-5559.5; Sunnybrook Health Sciences Centre: SUN-4851).For every participant, informed consent was sought verbally and documented electronically prior to each interview.
: Not applicable.
: S.C. has received honoraria and consultancy from Sobi. C.P. has received honoraria for participation in speakers bureaus and/or consulting for Alexion; Apellis/Sobi; Regeneron; and Biocryst, has served as a clinical site investigator for trials funded by Alexion and Apellis, and is a member of a clinical trial outcomes adjudication committee for Amgen.
