Bosman, A. http://orcid.org/0000-0002-7466-1472
Appelman-Dijkstra, N. M.
Boot, A. M.
de Borst, M. H.
van de Ven, A. C.
de Jongh, R. T.
Bökenkamp, A.
van den Bergh, J. P.
van der Eerden, B. C. J.
Zillikens, M. C. http://orcid.org/0000-0001-9186-3423
Funding for this research was provided by:
Kyowa Kirin Pharma BV
Article History
Received: 12 September 2023
Accepted: 27 November 2023
First Online: 16 January 2024
Declarations
:
: ABN is supported by a grant from Health ~ Holland (PhosphoNorm; LSHM18029). The institution of MZ and BE has received a research grant from Kyowa Kirin and MZ is an unpaid board member of the steering committee of the Kyowa Kirin International XLH registry. The institution of ABT received research funds, consulting and speakers fees from Kyowa Kirin. The institution of NA received research funds and speakers fees from Kyowa Kirin. JB received consulting fees from UCB and Amgen. MB, AV, RJ, and ABK have nothing to declare.
: This study was reviewed by the medical ethics committees of all participating hospitals. All participants provided written informed consent to participate in the study and to have their medical files reviewed.