Funding for this research was provided by:
Action for A-T (project 4519)
ZonMW (SONNET study 543002002)
Received: 11 July 2019
Revised: 12 September 2019
Accepted: 20 September 2019
First Online: 11 November 2019
Compliance with ethical standards
: The authors declare that they have no conflict of interest.
: This article includes a questionnaire study that is not subjected to the Medical Research Involving Human Subjects Act (WMO). The questionnaires were in accordance with the ethical standards of the institutional ethics committee (METC 2018-4518).
: Participation in the questionnaire after receiving the invitation implied consent. Informed consent was obtained from all individual participants included in the study.