Morken, Colleen
Tevaarwerk, Amye J.
Juckett, Mark B.
Swiecichowski, Amanda K.
Haine, James E.
Zhang, Xiao
Williams, Zachary T.
Norslien, Kirsten
Campbell, Bethaney
Wassenaar, Timothy
Sesto, Mary E.
Funding for this research was provided by:
National Cancer Institute (Cancer Center Support Grant P30 CA014520, UL1TR000427)
University of Wisconsin-Madison School of Medicine and Public Health's Wisconsin Partnership Program (WPP-ICTR grant # 3086)
National Center for Advancing Translational Sciences (KL2TR000428)
University of Wisconsin Graft-versus-Host Disease Fund
Don W. Anderson Family
Herman and Gwendolyn Shapiro Foundation
Article History
Received: 12 May 2021
Accepted: 7 August 2021
First Online: 5 September 2021
Declarations
:
: All study activities were approved by the University of Wisconsin (UW) Health Sciences Institutional Review Board.
: <b>Survivors:</b>“You have been sent this survey because you have been identified as a patient who has received a bone marrow transplant.We are interested in your views on the University of Wisconsin Carbone Cancer Center’s initiative to provide a document called a Survivorship Care Plan to patients, their primary care team, and referring oncologists. Survivorship Care Plans summarize cancer diagnosis, treatment and follow-up visits and testing recommendations. Participation involves taking an online survey that is mostly multiple choice. The survey will take approximately 30 min to complete. We recommend using a desktop or tablet rather than a phone, if you are completing this survey online. You will be paid $20 after completing this survey.Your participation in this research is voluntary and you may withdraw at any time. If you decide not to participate in this study or if you withdraw from participating, you will not be penalized. Your responses will be confidential—we will not collect identifying information such as your name, email address or IP address. To help protect your confidentiality, individual survey results will NOT be shared. The results of this study will be used for scholarly purposes. All data is stored in a password protected electronic format on a secure server.If you have questions about the research study, please contact Chris Mulhern at 608–265-3794 or clmulhern@wisc.edu.This research has been reviewed according to UW IRB procedures for research involving human subjects.By completing the survey, you are agreeing to participate in the research.”<b>Clinicians:</b>“You have been sent this survey because you have been identified as a clinician caring for bone marrow transplant survivors. We are interested in your views on the University of Wisconsin Carbone Cancer Center’s initiative to provide a document called a Survivorship Care Plan to bone marrow transplant patients and their referring clinicians (e.g., primary care, oncology). The purpose of this research is to assess the clinical usefulness of Survivorship Care Plans and to understand what information referring clinicians need in order to care for bone marrow transplant patients.Participation involves taking an online survey that is mostly multiple choice. The survey will take approximately 20 min to complete. We recommend using a desktop or tablet rather than a phone. Your participation in this research is voluntary and you may withdraw at any time. If you decide not to participate in this study or if you withdraw from participating, you will not be penalized. You are not expected to directly benefit from this study, however the information learned from this study may make it easier for oncologists to create and provide care plans to cancer survivors. There is a small risk of loss of confidentiality. To decrease this risk, the survey is anonymous. We will not collect identifying information such as your name, email address or IP address and individual survey results will NOT be shared. The results of this study will be used for scholarly purposes. All data is stored in a password protected electronic format on a secure server.If you have questions about the research study, please contact the Dr. Mark Juckett, MD, study Principal Investigator at mbj@medicine.wisc.edu or 608–263-0338. This research has been reviewed according to UW IRB procedures for research involving human subjects.By completing the survey, you are agreeing to participate in the research.”
: The authors affirm that human research participants provided informed consent for publication.
: Tevaarwerk, Amye J—Epic Systems (family member). The rest of the authors declare no competing interests.