den Hollander, Dide
Dirkson, Anne R.
Verberne, Suzan
Kraaij, Wessel
van Oortmerssen, Gerard
Gelderblom, Hans
Oosten, Astrid
Reyners, Anna K. L.
Steeghs, Neeltje
van der Graaf, Winette T. A.
Desar, Ingrid M. E.
Husson, Olga http://orcid.org/0000-0002-1387-8686
Funding for this research was provided by:
Novartis (006.18)
SIDN fund (174054)
European Organisation for Research and Treatment of Cancer (003-2018)
Nederlandse Organisatie voor Wetenschappelijk Onderzoek (VIDI198.007)
Article History
Received: 1 December 2021
Accepted: 19 February 2022
First Online: 2 March 2022
Declarations
:
: Ethical approval for the cross-sectional study was provided by the medical ethical committee of the Radboud University Medical Centre (2019–5888). According to the Dutch law, approval of one ethical committee for questionnaire research is valid for all participating centres. Permission to use data from the Facebook group was given by GIST Support International. Discussions were pseudonymized and messages could not be traced back to individual members. No formal approval was needed for the use of data from the public Facebook group, as the General Data Protection Regulation (GDPR) allows the use of data from publicly accessible forums with justified cause.
: In the survey study, participants provided informed consent, including permission to link survey data with data from the NCR. Permission to use data from the Facebook group was given by GIST Support International.
: Not applicable.
: The authors declare no competing interests.