Funding for this research was provided by:
EU Joint Programme – Neurodegenerative Disease Research
Accepted: 24 September 2019
First Online: 8 October 2019
Compliance with ethical standards
: The authors have no conflicts of interest.
: All individual countries received medical ethical approval in their own country. Ethical consideration differs between countries: Medischeethische toetsingscommissie (NL), Wales Research Ethics Committee 5, Bangor (UK), Ethics committee of the Medical Faculty, Martin Luther University Halle-Wittenberg (DE), Regional committee for medical and health research ethics, South-East B (NO), the Regional Ethics Review Board (SW), Dublin City University Research Ethics Committee (IE), Ethics Committee of the Nova Medical School, Ethics Committee of Centro Hospitalar de Lisboa Ocidental, Ethics Committee of ARSLVT, Ethics Committee of ARSA, Comissão Nacional de Protecção de Dados (PT), Comitato Etico, IRCCS San Giovanni di DioFatebenefratelli (IT). All participating NHS sites in the UK received permission to perform the study. The carer and the person with dementia both signed a separate informed consent form, after they had sufficient time to read the form and ask questions if needed. The study protocol complies with the Medical Research Involving Human Subjects Act and codes on ‘good use’ of clinical data.
: The carer and the person with dementia both signed a separate informed consent form, after they had sufficient time to read the form and ask questions if needed.