Carlozzi, Noelle E. http://orcid.org/0000-0003-0439-9429
Boileau, Nicholas R.
Paulsen, Jane S.
Downing, Nancy R.
Ready, Rebecca
Perlmutter, Joel S.
Cella, David
Chou, Kelvin L.
McCormack, Michael K.
Barton, Stacey
Lai, Jin-Shei
Funding for this research was provided by:
National Institute of Neurological Disorders and Stroke (R01NS077946)
National Center for Advancing Translational Sciences (UL1TR000433)
National Institute of Neurological Disorders and Stroke (R01NS040068)
NIH, Center for Inherited Disease Research
CHDI Foundation
Article History
Accepted: 9 December 2019
First Online: 18 December 2019
Compliance with ethical standards
:
: The authors declare that they have no conflict of interest.
: All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. University of Michigan Medical School Institutional Review Board, HUM00055669, initial approval 2/1/2012. Cleveland Clinic Institutional Review Board, IRB# 13-460, initial approval 4/26/2013. Indiana University Institutional Review Board (IRB-01), Protocol # 1208009383, initial approval 9/7/2012. Johns Hopkins Medicine Institutional Review Board, Study # NA_00079341, initial approval 12/13/2012. University of Medicine & Dentistry of New Jersey (which was subsumed by Rutgers University) Institutional Review Board, Study ID Pro2012002196, initial approval 4/4/2013. Park Nicollet Institute Institutional Review Board, Study 04334-13-A, initial approval 11/15/2013. University of California San Francisco Institutional Review Board, IRB # 13-10880 Reference # 065701, initial approval 9/4/2013. University of California Los Angeles Institutional Review Board, IRB # 12-000743, initial approval 6/12/2012. University of Iowa Institutional Review Board, IRB ID # 201301724, initial approval 1/17/2013. Washington University in St. Louis Institutional Review Board, IRB ID # 201206052, initial approval 8/14/2012. Northwestern University Institutional Review Board deemed this study (STU00200337) was determined exempt (“Not Human Research Determination”) on 2/9/2015.
: Informed consent was obtained from all individual participants included in the study.