Ney, Blair http://orcid.org/0000-0003-4026-4863
Eratne, Dhamidhu http://orcid.org/0000-0002-3226-7645
Lewis, Victoria http://orcid.org/0000-0003-2936-6308
Ney, Luke http://orcid.org/0000-0003-0209-8366
Li, Qiao-Xin http://orcid.org/0000-0001-8438-3763
Stehmann, Christiane http://orcid.org/0000-0001-8282-9151
Collins, Steven http://orcid.org/0000-0002-5245-6611
Velakoulis, Dennis http://orcid.org/0000-0002-8842-8479
Article History
Received: 13 February 2021
Accepted: 14 April 2021
First Online: 26 April 2021
Declarations
:
: Data collection and storage was mediated through the Australian National Creutzfeldt-Jakob Disease Registry as per routine operations. Ethical approval for use of this data was gained through the University of Melbourne (Ethics ID: 1341074) and conforms with the ethical standards laid down in the 1964 Declaration of Helsinki and its later amendments.
: Obtaining informed consent to participate is part of routine operations at the ANCJDR. Written informed consent to participate in research derived from ANCJDR operations was gained from all patients in this study, or where patients cannot provide informed consent, from the appropriate next of kin and/or legal decision-maker.
: Obtaining informed consent to publish patient data is also part of routine operations at the ANCJDR. The authors affirm that written informed consent for publication of patient data derived from ANCJDR operations was also gained from all patients in this study, or where patients cannot provide informed consent, from the appropriate next of kin and/or legal decision-maker.
: The authors declare no competing interests.