Funding for this research was provided by:
the German Federal Ministry of Education and Science
UK Research and Innovation (EP/X023206/1)
Article History
Accepted: 19 February 2024
First Online: 1 March 2024
Declarations
:
: Initial ethical approval was obtained from the Ethics Committee of the University of Munich Children’s Hospital and the Bavarian Health Council. Ethical approval for the follow-up in adulthood was obtained from the Ethical Board of the University Hospital Bonn (reference 159/09).
: Parents provided informed written consent within 48 h of their child’s birth and all adult participants provided informed written consent. For adult participants with severe impairment, consent was provided by an assigned guardian.
: All authors state that there is no conflict of interest.