Jones, Renee http://orcid.org/0000-0002-5332-5226
O’Loughlin, Rachel http://orcid.org/0000-0002-6451-2713
Xiong, Xiuqin http://orcid.org/0000-0002-1323-4223
Bahrampour, Mina http://orcid.org/0000-0002-6915-1865
Devlin, Nancy http://orcid.org/0000-0002-1561-5361
Hiscock, Harriet http://orcid.org/0000-0003-3017-2770
Chen, Gang http://orcid.org/0000-0002-8385-5965
Mulhern, Brendan http://orcid.org/0000-0003-3656-8063
Dalziel, Kim http://orcid.org/0000-0003-4972-8871
,
Funding for this research was provided by:
Australian Government Medical Research Futures Fund (1200816)
EuroQol Research Foundation (361-RA, 330-PhD)
National Health and Medical Research Council (1136222)
University of Melbourne
Article History
Accepted: 11 October 2023
First Online: 13 November 2023
Declarations
:
: Open Access funding enabled and organized by CAUL and its Member Institutions. This research was funded by an Australian Government Medical Research Futures Fund (MRFF) grant (1200816) and a EuroQol Research Foundation Grant (361-RA). RJ and RO are supported by a Research Training Program Scholarship provided by the Australian Commonwealth Government and the University of Melbourne. RJ is also supported by a EuroQol Research Foundation PhD Grant (330-PhD). HH is funded by a National Health and Medical Research Council (NHMRC) Practitioner Fellowship (1136222). The Murdoch Children’s Research Institute is supported by the Victorian Government’s Operational Infrastructure Support Program.
: KD, ND, BM, HH, and RJ have all received previous or current funding from the EuroQol Research Foundation, who is the developer and copyright holder of some instruments included in this study. ND and BM are members of the EuroQol Group. The EuroQol Research Foundation contributed to funding for this research. Views expressed in this paper are those of the authors and are not necessarily those of the EuroQol Research Foundation.
: This study was approved by The Royal Children’s Hospital (RCH) Human Research Ethics Committee (HREC/71872/RCHM2021) on 20 May 2021.
: The study was prospectively registered with the Australia New Zealand Clinical Trials Registry (ANZCTR) (ACTRN12621000657820).
: The datasets generated during and/or analysed during the current study are available from the corresponding author on reasonable request.
: Not applicable.
: Not applicable.
: Informed consent was obtained from all individual participants included in the study.
: Conceptualisation: KD, ND, BM, HH, GC. Methodology: all authors. Project administration: RJ. Formal analysis: RJ. Validation: RO, XX, MB. First manuscript draft writing: RJ. Draft review and editing: all authors. Supervision: KD, ND, BM, HH. All authors read and approved the final manuscript.
: This article is published in a journal supplement wholly funded by the Australian Government MRFF funded QUOKKA research grant 1200816, the University of Melbourne, the EuroQol Research Foundation, the University of Technology Sydney and Flinders University.