Boulanger, Vanessa
Schlemmer, Marissa
Rossov, Suzanne
Seebald, Allison
Gavin, Pamela
Funding for this research was provided by:
U.S. Food and Drug Administration (U18 FD 005320)
Article History
First Online: 25 March 2020
Compliance with Ethical Standards
:
: Funding for this publication was made possible, in part, by the US Food and Drug Administration, through Grant U18 FD 005320. Views expressed in written materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services; nor does any mention of trade names, commercial practices, or organization imply endorsement by the United States Government. Funding from the National Organization for Rare Disorders (NORD) generously covered the Open Access fee for this manuscript.
: The authors are employed by the National Organization for Rare Disorders and are responsible for oversight of the IAMRARE™ Patient Registry Program. Authors are also partners in the Rare Disease Cures Accelerator [CitationRef removed].