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Improving the informed consent process in international collaborative rare disease research: effective consent for effective research

Crossref DOI link: https://doi.org/10.1038/ejhg.2016.2

Published Online: 2016-02-10

Published Print: 2016-09

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Gainotti, Sabina

Turner, Cathy

Woods, Simon

Kole, Anna

McCormack, Pauline

Lochmüller, Hanns

Riess, Olaf

Straub, Volker

Posada, Manuel

Taruscio, Domenica

Mascalzoni, Deborah
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Article History

Received: 7 August 2015

Revised: 23 November 2015

Accepted: 8 December 2015

First Online: 10 February 2016

Competing interests

: The authors declare no conflict of interest.