Raffai, F
Timmis, O
Article History
Received: 14 February 2017
Revised: 19 April 2017
Accepted: 26 April 2017
First Online: 3 May 2017
Competing interests
: FR is the Executive Director of Findacure and a trustee of the Cambridge Rare Disease Network. OT is the CEO of the AKU Society. The authors have no other relevant affiliations or financial involvement with any organisation or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript. This includes employment, consultancies, honoraria, stock ownership or options, expert testimony, grants or patents received or pending, or royalties.