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Understanding perspectives of safety-net NICU neonatologists disclosing genomic sequencing results: a mixed methods approach

Crossref DOI link: https://doi.org/10.1038/s41372-026-02655-4

Published Online: 2026-05-05

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Hills, Sonia https://orcid.org/0000-0002-5302-3236
Werner, Meghan

Douglas, Jessica

D’Gama, Alissa M. https://orcid.org/0000-0002-2482-5328
Wojcik, Monica H. https://orcid.org/0000-0002-8162-5031
Young, Vanessa https://orcid.org/0000-0003-2258-4433
,

Yu, Timothy W. https://orcid.org/0000-0003-2988-7701
Agrawal, Pankaj B.

Parker, Margaret G. https://orcid.org/0000-0001-6338-3350
Funding

Funding for this research was provided by:

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | National Human Genome Research Institute (R01 HG011798)

U.S. Department of Health & Human Services | NIH | Eunice Kennedy Shriver National Institute of Child Health and Human Development (K23 HD102589)
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Text and Data Mining valid from 2026-05-05

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Article History

Received: 20 October 2025

Revised: 18 February 2026

Accepted: 25 March 2026

First Online: 5 May 2026

Competing interests

: The authors declare no competing interests.

: This study was approved by the Institutional Review Board (IRB) of Boston Children’s Hospital (BCH) (FW A00002071) as the single IRB with active reliance agreements at partnering safety-net NICU sites. Families provide written informed consent electronically, and provider consent is implied through the completion of study procedures. The study was performed in accordance with the Declaration of Helsinki.

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