Tetreault, Lindsay
Rujeedawa, Tanzil
Burn, Lance A. https://orcid.org/0009-0006-0449-5786
Zipser, Carl
Cook, Chad
Margetis, Konstantinos https://orcid.org/0000-0002-3715-8093
Martin, Allan R.
Anderson, David B. https://orcid.org/0000-0001-7104-122X
Lantz, Justin M.
Tabrah, Julia
Wilson, Jamie RF
Rodrigues-Pinto, Ricardo
Yurac, Ratko https://orcid.org/0000-0003-3603-6294
Wood, Lianne
Onofrei, Ligia
Chauhan, Rohil V. https://orcid.org/0000-0002-7244-2305
Solberg, Tore K.
Harrop, James https://orcid.org/0000-0002-0943-3406
Stacpoole, Sybil
Milligan, Jamie https://orcid.org/0000-0003-3387-1614
Treanor, Caroline
Furlan, Julio C.
Harel, Noam Y.
Lee, Michael W. Y. https://orcid.org/0000-0002-7789-1222
Hutton, Mike
Kwon, Brian K. https://orcid.org/0000-0002-5089-8280
Kotter, Mark
Fehlings, Michael G. https://orcid.org/0000-0002-5722-6364
Davies, Benjamin M.
Article History
Received: 28 June 2025
Revised: 3 December 2025
Accepted: 13 February 2026
First Online: 4 April 2026
Competing interests
: The authors declare no competing interest.
: Ethical approval was obtained for all methods from the University of Cambridge Human Biology Research Ethics Committee HBREC.2023.19. The study is led by an incubator group of multidisciplinary healthcare professionals and people with lived experience. The study involves patients/public with informed consent through surveys of individuals with lived experience, and international experts in DCM.