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Article History

Received: 21 August 2024

Revised: 19 November 2024

Accepted: 29 November 2024

First Online: 7 May 2025

Ethics declaration

: The authors declare no conflicts of interest. The Health Research Authority decision tool, developed by the NHS Research Ethics Committee, was used for ethical support and deemed no ethical approval was required. The Brittle Bone Society website informed participants that the survey would be used for research to investigate current issues and care experiences in relation to dental concerns of those living with OI and to improve services within the UK and Ireland. This was also highlighted to participants at the beginning of the questionnaire; therefore, completion of the voluntary survey implied consent. The questionnaire did not collect any identifiable information from participants and was analysed retrospectively. The Brittle Bone Society has a Data Protection Policy, adheres to GDPR and is registered with the Information Commissioner's Office.