Document is current
Any future updates will be listed below
-
Authors
Hunter, Jacqueline D. https://orcid.org/0000-0002-2051-0396
Hetherington, Kate https://orcid.org/0000-0002-5457-5462
McGillycuddy, Maeve
Wakefield, Claire E. https://orcid.org/0000-0001-7704-7067
Tucker, Katherine M. https://orcid.org/0000-0002-7180-6576
O’Brien, Tracey A.
McGill, Brittany C.
Fuentes-Bolanos, Noemi A. https://orcid.org/0000-0001-6880-5428
Bhatia, Kanika
Padhye, Bhavna
Grant, Andrew
Barlow-Stewart, Kristine
Warby, Meera
Courtney, Eliza K.
Peate, Michelle
-
Funding
Funding for this research was provided by:
Australian Government Research Training Program (RTP), The Kids Cancer Project Col Reynolds PhD Top-Up Scholarship
Cancer Institute NSW ((2021/TPG2112))
Department of Health | National Health and Medical Research Council (APp2008300)
- License Information
-
More Information
Article History
Received: 15 July 2025
Revised: 21 December 2025
Accepted: 2 February 2026
First Online: 5 March 2026
Competing interests
: KMT has received an honorarium for preparing educational material on Von Hippel–Lindau disease and for participating in a committee to progress access to medical treatments for Von Hippel–Lindau disease in Australia. The remaining authors have declared no conflicts of interest.
: We received ethics and governance approval to conduct this study (2020/ETH00634) in accordance with the Declaration of Helsinki. All study participants provided informed consent to participate.
