de Graaf, Gert https://orcid.org/0000-0002-4990-5711
Buckley, Frank https://orcid.org/0000-0002-9708-2705
Skotko, Brian G. https://orcid.org/0000-0002-5232-9882
Article History
Received: 16 March 2020
Revised: 22 September 2020
Accepted: 30 September 2020
First Online: 31 October 2020
Change Date: 7 June 2022
Change Type: Correction
Change Details: A Correction to this paper has been published:
Change Details: https://doi.org/10.1038/s41431-022-01124-8
Compliance with ethical standards
:
: Dr BGS occasionally consults on the topic of Down syndrome through Gerson Lehrman Group. He receives remuneration from Down syndrome non-profit organizations for speaking engagements and associated travel expenses. Dr BGS receives annual royalties from Woodbine House, Inc., for the publication of his book, <i>Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters</i>. Within the past 2 years, he has received research funding from F. Hoffmann-La Roche, Inc. and LuMind IDSCÂ Down Syndrome Foundation to conduct clinical trials for people with Down syndrome. Dr BGS is occasionally asked to serve as an expert witness for legal cases where Down syndrome is discussed. Dr BGS serves in a non-paid capacity on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress and the Professional Advisory Committee for the National Center for Prenatal and Postnatal Down Syndrome Resources. Dr BGS has a sister with Down syndrome. Dr GdG had a daughter with DS, who passed away in 2005 at the age of 15. He works as science and education officer at the Dutch Down Syndrome Foundation, a non-profit organization. FB serves a CEO of Down Syndrome Education International and Down Syndrome Education USA, nonprofits engaged in research and support for young people with Down syndrome. He has a sister with Down syndrome.