Document is current
Any future updates will be listed below
-
Authors
Terrill, Bronwyn https://orcid.org/0000-0003-0263-363X
McKnight, Lauren
Pearce, Angela
Gordon, Heather https://orcid.org/0000-0003-2073-4303
Lo, William
Lee, I-Chieh Jennifer https://orcid.org/0000-0003-3783-3236
Runiewicz, Monica https://orcid.org/0000-0003-4509-0049
Palmer, Alex https://orcid.org/0000-0002-7853-8797
Andrews, Lesley
Kirk, Edwin https://orcid.org/0000-0002-4662-0024
Goldberg, Daniel
Tucker, John
Murray, David https://orcid.org/0000-0002-3073-3593
Kaplan, Warren
Kummerfeld, Sarah https://orcid.org/0000-0002-0089-2358
Burnett, Leslie https://orcid.org/0000-0001-7282-9596
-
Funding
Funding for this research was provided by:
Shire (IIR-AUS-000898)
- License Information
-
More Information
Article History
Received: 29 December 2021
Revised: 6 November 2022
Accepted: 18 November 2022
First Online: 11 January 2023
Competing interests
: The authors declare no competing financial interests at the time the research was undertaken. Subsequent to the completion of this study, LB is a Pathologist to Invitae Corporation.
: All procedures followed were in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with the Helsinki Declaration of 1975, as revised in 2000 []. Informed consent was obtained from all participants. The carrier screening study was approved by the Human Research Ethics Committee of Northern Sydney Central Coast Local Health District (study 2019/ETH08291). Survey data associated with the education sessions was obtained only from students who consented to a separate study (HC200610) approved by the University of New South Wales Human Research Ethics Committee.
