Wilkinson, Niamh R. https://orcid.org/0009-0004-1056-2098
Cervi, Elena https://orcid.org/0000-0003-2612-1014
Wagner, Bart https://orcid.org/0000-0003-1244-3063
Morris-Rosendahl, Deborah https://orcid.org/0000-0002-7780-4707
Baker, Duncan
Flora, Harpaul
von Klemperer, Kate
Andrew, Toby
Ghali, Neeti https://orcid.org/0000-0003-2847-1376
van Dijk, Fleur S. https://orcid.org/0000-0001-6341-169X
Funding for this research was provided by:
Imperial College London (P89680-1)
Article History
Received: 27 June 2024
Revised: 3 December 2024
Accepted: 9 December 2024
First Online: 27 December 2024
Competing interests
: The authors declare no competing interests.
: Cohort data was obtained from the Natural history Exploration of rare EDS types (NEEDS) study and retrospective review of clinical activity in the London EDS service. All data was anonymised. Ethical approval was obtained for the NEEDS study from the Newcastle and North Tyneside Research Ethics Committee.