Genus, Tracey S. E.
Bouvier, Catherine
Wong, Kwok F.
Srirajaskanthan, Rajaventhan
Rous, Brian A.
Talbot, Denis C.
Valle, Juan W. http://orcid.org/0000-0002-1999-0863
Khan, Mohid
Pearce, Neil
Elshafie, Mona
Reed, Nicholas S.
Morgan, Eileen
Deas, Andrew
White, Ceri
Huws, Dyfed
Ramage, John
Funding for this research was provided by:
NET Patient Foundation 74 Upper Holly Walk Leamington Spa UK CV32 4JL
Article History
Received: 22 January 2019
Revised: 21 September 2019
Accepted: 1 October 2019
First Online: 25 October 2019
Competing interests
: The authors declare no competing interests.
: Data is collected by the UK cancer registries (PHE NCRAS, NHS National Services Scotland, Public Health Wales Welsh Cancer Intelligence & Surveillance Unit and Public Health Agency Queen’s University Belfast) under Regulations 2 and 5 of Section 251 of the NHS Act 2006. The Regulation provides the legal context to set aside the common-law duty of confidence to allow data to be collected without direct consent to support core public health functions. It is this permission that enables the UK cancer registries to collect detailed information from all people resident in the UK who have cancer or a reasonable suspicion of cancer.
: This project was funded by the NET Patient Foundation.
: No individual’s personal data was included, only aggregated data is presented.
: Supplementary datasets cited have been made available as supplementary material. Other data for this study is available on request from PHE NCRAS, NHS National Services Scotland, Public Health Wales Welsh Cancer Intelligence & Surveillance Unit and Public Health Agency Queen’s University Belfast.