Maher, Eamonn R. http://orcid.org/0000-0002-6226-6918
Adlard, Julian
Barwell, Julian
Brady, Angela F.
Brennan, Paul
Cook, Jackie
Crawford, Gillian S.
Dabir, Tabib
Davidson, Rosemarie
Dyer, Rebecca
Harrison, Rachel
Forde, Claire
Halliday, Dorothy
Hanson, Helen
Hay, Eleanor
Higgs, Jenny
Jones, Mari
Lalloo, Fiona http://orcid.org/0000-0002-0612-8377
Miedzybrodzka, Zosia
Ong, Kai Ren
Pelz, Frauke
Ruddy, Deborah
Snape, Katie
Whitworth, James
Sandford, Richard N.
Funding for this research was provided by:
NIHR Cambridge Biomedical Reserach Centre VHL Alliance UK
Article History
Received: 25 August 2021
Revised: 17 January 2022
Accepted: 27 January 2022
First Online: 19 February 2022
Ethics approval and consent to participate
: Approval for an audit of specialist services for VHL disease services was provided at each of the participating centres. Individual patient consent was not obtained.
: Not applicable.
: EM and JB have received compensation for participating in an expert forum meeting organised by Merck Sharp & Dohme. Other authors have no competing interests to declare.