Lewis, Celine http://orcid.org/0000-0001-7169-1521
Sanderson, Saskia C.
Hammond, Jennifer
Hill, Melissa
Searle, Beverly
Hunter, Amy
Patch, Christine http://orcid.org/0000-0002-4191-0663
Chitty, Lyn S.
Funding for this research was provided by:
Great Ormond Street Hospital Children's Charity V0416 Health Education England
Article History
Received: 27 August 2019
Revised: 3 December 2019
Accepted: 5 December 2019
First Online: 2 January 2020
Compliance with ethical standards
:
: CP has been on a secondment with Genomics England as Clinical Lead for Genetic Counselling since October 2017. The other authors declare no conflicts of interest.
: Ethical approval to engage young people in the development and evaluation process was provided by NRES Committee West Midlands (15/WM/0258) on 14/8/15.