Doser, Karoline
Belmonte, Federica
Andersen, Klaus Kaae
Østergaard, John R.
Hove, Hanne
Handrup, Mette M.
Ejerskov, Cecilie
Mulvihill, John J.
Winther, Jeanette F. http://orcid.org/0000-0002-3440-5108
Kenborg, Line http://orcid.org/0000-0002-3584-6570
Funding for this research was provided by:
Leo Foundation
Article History
Received: 19 January 2022
Revised: 24 June 2022
Accepted: 4 July 2022
First Online: 20 July 2022
Competing interests
: The authors declare no competing interests.
: The study is part of the NF1 research program ‘Life with NF1’, which was originally approved by the Danish Protection Agency (Record 2014–41–2935). With reference to the EU General Data Protection Regulation (GDPR), the research project is listed in a local database (2018-DCRC-0012) at the Danish Cancer Society Research Center. The database provides an overview of ongoing research projects involving personal data under the GDPR and replaces the former notification from the Danish Data Protection Agency.