Hastings Ward, Jillian http://orcid.org/0000-0001-5146-5498
Middleton, Rebecca
McCormick, David
White, Helen
Kherroubi Garcia, Ismael http://orcid.org/0000-0002-6850-8375
Simmonds, Shelley
Chandramouli, Latha
Hart, Andrew
Article History
Received: 18 July 2022
Revised: 15 September 2022
Accepted: 15 September 2022
First Online: 4 October 2022
Competing interests
: JHW is the independent Chair of the Participant Panel at Genomics England, a member of the UK National Genomics Board, and a founding Board Member of the CureGRIN Foundation. She also sits on the NHS Digital Research Advisory Group and is a lay adviser to Health Data Research UK. RM is the independent Vice Chair of the Participant Panel at Genomics England, and Founder and CEO of Hereditary Brain Aneurysm Support (CIC). DMc is a Lay Patient Representative to the MSc in Genomic Sciences, Manchester Academy for Healthcare Scientist Education (MAHSE) Patient Forum, and Interim Chair to the Patient & Public Voice Panel, North West Genomic Medicine Service Alliance. SS is a Trustee of Disability Rights UK, a member of the PPIE Panel of the North Thames Genomic Medicine Service Alliance, a lay member of the Neuromuscular North Star Clinical Network, a campaigner for the Changing Places Consortium and the founder of Fraser & Friends (Disability Rights & Rare Disease Advocate). LC is a community paediatrician, Sirona Care & Health.