Terrill, Bronwyn http://orcid.org/0000-0003-0263-363X
McKnight, Lauren
Pearce, Angela
Gordon, Heather http://orcid.org/0000-0003-2073-4303
Lo, William
Lee, I-Chieh Jennifer http://orcid.org/0000-0003-3783-3236
Runiewicz, Monica http://orcid.org/0000-0003-4509-0049
Palmer, Alex http://orcid.org/0000-0002-7853-8797
Andrews, Lesley
Kirk, Edwin http://orcid.org/0000-0002-4662-0024
Goldberg, Daniel
Tucker, John
Murray, David http://orcid.org/0000-0002-3073-3593
Kaplan, Warren
Kummerfeld, Sarah http://orcid.org/0000-0002-0089-2358
Burnett, Leslie http://orcid.org/0000-0001-7282-9596
Funding for this research was provided by:
Shire (IIR-AUS-000898)
Article History
Received: 29 December 2021
Revised: 6 November 2022
Accepted: 18 November 2022
First Online: 11 January 2023
Competing interests
: The authors declare no competing financial interests at the time the research was undertaken. Subsequent to the completion of this study, LB is a Pathologist to Invitae Corporation.
: All procedures followed were in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with the Helsinki Declaration of 1975, as revised in 2000 [CitationRef removed]. Informed consent was obtained from all participants. The carrier screening study was approved by the Human Research Ethics Committee of Northern Sydney Central Coast Local Health District (study 2019/ETH08291). Survey data associated with the education sessions was obtained only from students who consented to a separate study (HC200610) approved by the University of New South Wales Human Research Ethics Committee.