Strnadová, Iva
Loblinzk, Julie
Scully, Jackie Leach
Danker, Joanne
Tso, Michelle
Jackaman, Karen-Maia
Dunn, Manjekah http://orcid.org/0000-0002-8498-7329
Willow, Sierra Angelina
Sarfaraz, Skie
Fitzgerald, Vanessa http://orcid.org/0000-0001-8664-7136
Boyle, Jackie
Palmer, Elizabeth Emma http://orcid.org/0000-0003-1844-215X
Article History
Received: 10 October 2022
Revised: 13 December 2022
Accepted: 19 December 2022
First Online: 20 January 2023
Change Date: 20 February 2023
Change Type: Update
Change Details: Missing Open Access funding information has been added in the Funding Note.
Competing interests
: The authors declare no competing interests.
: This study was approved by the following ethics committees: The UNSW Human Research Ethics Committee (UNSW HREC): for recruitment of people through grassroots organisations, including Self-Advocacy Sydney and NSW Council for Intellectual Disability; The Hunter New England Local Health District Human Research Ethics Committee (HNELHD HREC): for recruitment of people through the Genetics of Learning Disability (GOLD) service; The Sydney Children’s Hospitals Network Human Research Ethics Committee (SCHN HREC) for recruitment of individuals through Sydney Children’s Hospitals network; and The South Western Sydney Human Research Ethics Committee (SWSLHD HREC): for recruitment of people through the Liverpool hospital clinical genetics service.