Haro, Endika http://orcid.org/0000-0002-0229-6365
Petit, Florence http://orcid.org/0000-0002-1368-1023
Pira, Charmaine U.
Spady, Conor D.
Lucas-Toca, Sara
Yorozuya, Lauren I.
Gray, Austin L. http://orcid.org/0000-0003-4930-9423
Escande, Fabienne
Jourdain, Anne-Sophie
Nguyen, Andy http://orcid.org/0000-0002-9736-9212
Fellmann, Florence http://orcid.org/0000-0003-3156-4768
Good, Jean-Marc http://orcid.org/0000-0001-9491-7597
Francannet, Christine
Manouvrier-Hanu, Sylvie http://orcid.org/0000-0001-8837-3386
Ros, Marian A. http://orcid.org/0000-0002-1224-7671
Oberg, Kerby C. http://orcid.org/0000-0002-1241-4273
Funding for this research was provided by:
National organization of rare diseases
Article History
Received: 6 August 2019
Accepted: 31 August 2021
First Online: 20 September 2021
Competing interests
: The authors declare no competing interests.