Berntorp, Erik http://orcid.org/0000-0002-1337-7195
Fischer, Kathelijn http://orcid.org/0000-0001-7126-6613
Hart, Daniel P.
Mancuso, Maria Elisa
Stephensen, David http://orcid.org/0000-0002-6175-3343
Shapiro, Amy D.
Blanchette, Victor
Article History
Accepted: 20 May 2021
First Online: 24 June 2021
Competing interests
: E.B. has received grants and/or research support from Bayer, CSL Behring, Shire and Sobi/Bioverativ and honoraria and/or consultation fees from Bayer, Octapharma and Shire/Takeda. The Van Creveldkliniek has received speaker’s fees from Bayer, Baxter/Shire, Sobi/Biogen, CSL Behring and Novo Nordisk; has performed consultancy for Bayer, Biogen, CSL Behring, Freeline, Novo Nordisk, Roche and Sobi; and has received research support from Bayer, Baxter/Shire, Novo Nordisk, Pfizer and Biogen for work done by K.F. Queen Mary University London has received research grants from Bayer, Octapharma and Takeda for work performed by D.P.H. He or his institution have received speaker or consultancy honoraria from Bayer, BioMarin, Biotest, Grifols, Novo Nordisk, Octapharma, Pfizer, Roche, Sanofi, Spark Therapeutics, Sobi, Takeda and UniQure. M.E.M. has acted as paid consultant, adviser or speaker for Bayer Healthcare, BioMarin, Catalyst, CSL Behring, Grifols, Kedrion, LFB, Novo Nordisk, Octapharma, Pfizer, Roche, Sobi, Spark Therapeutics and Takeda. D.S. is Chair of EAHAD Physiotherapy Committee, received research grant funding from the National Institute for Health Resarch (NIHR), Novo Nordisk, Pfizer, Roche, Sobi and acted as paid adviser or speaker for Bayer, Pfizer, Sobi, Roche and Takeda. V.B. is Chair of the International Prophylaxis Study Group (the IPSG), which is funded by grants from Bayer Healthcare, Bioverativ (now Sanofi/Genzyme), Novo Nordisk, Pfizer, Shire (now Takeda) and Spark Therapeutics to the Hospital for Sick Children Foundation, Toronto, Canada. He has received fees for participation in education events and advisory boards sponsored by Amgen, Bayer Healthcare, Novo Nordisk, Pfizer, Roche and Shire (now Takeda), and for participation in data safety monitoring boards for Octapharma and Takeda. He is recipient of investigator-initiated grants from Bayer Healthcare, Bioverativ (now Sanofi/Genzyme) and Shire (now Takeda). A.D.S. has served as consultant for Genentech, Roche, Novo Nordisk, BioMarin, Bioveritiv, Sanofi, ProMetic Bio Sciences, Kedrion, Sigilon and Takeda. She has received research funding from the above plus Agios, OPKO, Global Bio Therapeutics, Sangamo, Sigilon, Octapharma and Novartis.