Tempini, Niccolò http://orcid.org/0000-0002-5100-5376
Del Savio, Lorenzo
Funding for this research was provided by:
European Research Council (335925)
Bundesministerium für Bildung und Forschung (01GP1311)
Article History
First Online: 6 June 2018
Compliance with Ethical Standards
:
: This manuscript puts forward an argument, general in kind, about patient-powered research networks. It mostly draws from publicly available information and sources. The data collection did not directly involve (patient) human subject data. Part of the data collection was conducted as part of an organisational ethnography, reviewed for ethics by the Ph.D. ethics approval committee at the London School of Economics and Political Science.