Senabre Hidalgo, Enric https://orcid.org/0000-0002-6169-6676
Ball, Mad P. https://orcid.org/0000-0003-0544-5925
Opoix, Morgane
Greshake Tzovaras, Bastian https://orcid.org/0000-0002-9925-9623
Article History
Received: 22 October 2021
Accepted: 9 May 2022
First Online: 25 May 2022
Competing interests
: MPB is the Executive Director of the Open Humans Foundation. BGT is the Director of Research of the Open Humans Foundation.
: This study got ethics approval by the Inserm Ethics Evaluation Committee, which is an Institutional Review Board registered with the US Office of Human Research Protections (IRB00003888). Approval for this study was granted on 22/10/2020. All research was performed in accordance with the IRB guidelines and data privacy/protection regulations, and was performed in accordance with the Declaration of Helsinki.
: All 22 participants interviewed gave informed consent for the collection and use of data as presented in the text and the supplementary documents.